The Newborn Screening Translational Research Network (NBSTRN) 
facilitates ground-breaking research in newborn screening as an important part of the 
Eunice Kennedy Shriver National Institute of Child Health and Human Development
Hunter Kelly Newborn Screening Research Program.

Supported By:
This project has been funded in whole or in part with Federal funds from the NICHD, National Institutes of Health, Department of Health and Human Services, under Contract No. HHSN275201800005C.

Available Data

Asset 4wed
47 Conditions
Asset 3wed
6747 Subjects
Asset 2wed
>3 million data points

NBSTRN Suite of Tools

ELSI Advantage
Highlights the ethical, legal, and social issues important in newborn screening

The Longitudinal Pediatric Data Resource
Enables clinicians, researchers, parents and patients to enter health information in a secure, centralized system.

Newborn Screening Research Repository
Supports the analytical and clinical validation of new technologies, tracks emerging findings from pilots and enables new knowledge discovery through secondary use of accumulated data.