Every day, babies born in the United States receive comprehensive screening for treatable diseases. Newborn screening saves lives, and discoveries by researchers make it possible!
Research advances newborn screening by developing new screening and diagnostic tests and by discovering new treatments.
The NICHD-supported Newborn Screening Translational Research Network (NBSTRN) accelerates these efforts by developing tools, resources, and expertise available to researchers, healthcare professionals, families, advocacy groups, and state newborn screening programs.
Sign up to learn more about how NBSTRN helps advance newborn screening research.
A central goal for NBSTRN is to foster collaboration between research teams, State NBS programs, clinicians, advocacy groups, patients, and families. The LPDR houses millions of data points from ground-breaking studies available for data mining, visualization and secondary research.
Design a study, contribute data, and analyze and share data using the Longitudinal Pediatric Data Resource (LPDR).
Explore the NBS Conditions Resource (NBS-CR), contribute data, and connect with specialists.
Connect with researchers and healthcare professionals and learn about NBS for your disease of interest.
Support NBS research and share longitudinal data to help understand health outcomes.