The Newborn Screening Translational Research Network (NBSTRN)
facilitates ground-breaking research in newborn screening as an important part of the
Eunice Kennedy Shriver National Institute of Child Health and Human Development
Hunter Kelly Newborn Screening Research Program.
This project has been funded in whole or in part with Federal funds from the NICHD, National Institutes of Health, Department of Health and Human Services, under Contract No. HHSN275201800005C.
>3 million data points
NBSTRN Suite of Tools
Highlights the ethical, legal, and social issues important in newborn screening
The Longitudinal Pediatric Data Resource
Enables clinicians, researchers, parents and patients to enter health information in a secure, centralized system.
Newborn Screening Research Repository
Supports the analytical and clinical validation of new technologies, tracks emerging findings from pilots and enables new knowledge discovery through secondary use of accumulated data.