This introductory webinar begins with an overview of newborn screening (NBS) in the United States. We are made aware of the variations in the screens that are done, policy regarding NBS, and the length for which residual dried bloodspots (DBS) are stored in each state. The speakers touch on the benefits of using DBS specimens for research, but also the differing laws and public opinion surrounding the process. Finally, the Michigan state health department is used as an example of how residual specimens are stored and used for research, and the legal, ethical, and policy issues that were developed during the process.
Session 1: Introduction and Overiew of NBS and Research
Thursday, April 26, 2012
Bradford Therrell, Jr, PhD; Michelle Huckaby Lewis, MD, JD; Denise Chrysler, JD
Webinar slides (PDF):