Thank you to everyone who was able to attend and participate at the Network Meeting on September 8-9, 2016 at the Hamilton Crowne Plaza in Washington, DC. We hope that you found the meeting informative and worthwhile. Of the 101 people registered, 85 were able to join us in person.
In order to make next year’s meeting even more successful we request that you fill out this post-evaluation form. We thank you in advance for your comments and suggestions.
Below you will find presentations from the speakers and panelists at the 2016 NBSTRN Network Meeting:
NICHD Welcome- Melissa Parisi
NBSTRN Overview- Michael Watson
The North Carolina MPS I Newborn Screening Pilot- Cynthia Powell
Maximizing Pilot Studies- Michael Watson
Updates on the Diagnosis and Treatment of Adrenoleukodystrophy- Gerald Raymond
Common Rule and HIPAA Considerations for Researchers- Barbara Cammarata
Public Engagement- Natasha Bonhomme
NBS Candidate Condition ELSI Framework- Jeffrey Brosco
Duchenne Newborn Screening in the U.S.- Michele Lloyd- Puryear
Updates from NICHD- Della Hann