NBSTRN creates a centralized point of access to information valuable to conducting newborn screening research.
An ethical, legal and social issues resource for NBS researchers. Information on IRB's, Consent Form templates, and NBS FAQ's are available here.
Information about the state rules, regulations, and requirements related to NBS and research
Gaps in Research
Gaps in research identified via the Secretary's Advisory Committee on Heritable Disorders in Newborns and Children that may be ripe for investigation
Links to patient registries and newborn screening related information
Request a Letter of Support
Request a letter of support for your NBS research project
Study Planning Consultation
Interactive informed consent modules specific
to research in newborn screening
Get help in planning and understanding your newborn screening data