The primary focus of this workgroup will be to develop disease specific data sets (referred to as care plans in some the Regional Collaboratives) for all newborn screening disorders. This function will be accomplished in conjunction with the National Coordinating Center for the Genetics and Newborn Screening Regional Collaborative Groups (RCs) Newborn Screening Long-term Follow-up Workgroup (formerly called the Data Collection Workgroup). Several of the regions and the RC Long-term Follow-up Workgroup have made significant progress on these data sets for the metabolic disorders, and the next focus will be to create care plans for other newborn screening disorders.